NICU, Putrajaya Hospital
Baby Daniel was diagnosed with Congenital Diaphragmatic Hernia (CDH) with Unidentified Syndrome. Congenital diaphragmatic hernia (CDH) is a congenital malformation (birth defect) of the diaphragm. The cause is still unknown to the world and it is not hereditary. Baby Daniel had a hole at his right diaphragm which resulted to his intestine pushes into his chest; thereby impeding proper lung formation.
My heart was torn when I saw him lying helplessly and depending on machines to live. There were tubes everywhere in and out few parts of his body. He was a very beautiful baby, with full dark hair, long eye lashes, perfect brows and fair skin. After several complications, baby Daniel couldn't be saved during the last CPR given, after the doctors change the tubes around him. I was there waiting on the wheel chair alone nearby the section and I know he cannot be saved. Amir Daniel left us all at about 5.30pm. Inna lillahi wa inna ilahi rojiuun...
I requested for an early discharge. I don't think I could stay at the hospital since everybody else around me were having their babies with them; and I was just all alone. Plus, I kept on waking up in the middle of the night suddenly and just felt so lonely.
My husband arranged for the funeral from the hospital. We were lucky that he had some contacts and neighbors to help assist for everything. After picking up baby Daniel's body from the mortuary, we went back home for a while for a change of clothes. My husband's family was all there to see the baby for the first, and the last time..
Baby Amir Daniel was buried at around 1pm.